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Dementia web - Dementia Information Resource for All

Dementia web Factsheets

Dementia Organisations and Resources

Resources Introduction

This page contains information on a wide range of resources for carers, people with dementia and professionals – books to buy, books/leaflets to download free of charge, links to national organisations for information and factsheets. Don’t forget that you don’t need to buy books, you can borrow them from your local library.

You may also find our search page useful.

National Organisations

List and short description of some National Organisations.

Personal Life History Booklet

The Personal Life History Booklet (PDF, 255KB) is a wonderful resource, prepared by an Occupational Therapy Student, for Alzheimer's Australia.

"This booklet has been designed to collect the unique social and life history of an individual with dementia. This life history will help individualise the care of the person with dementia and maintain their identity. It will also help people caring for the individual to know them and develop strong relationships with them."

Resources for Children and Teenagers

A number of resources about dementia and/or caring, aimed specifically at children and teenagers.

The Alzheimer’s Society has produced a factsheet giving guidance to younger people about the impact of dementia on their family member.

If you are a child or young person/teenager looking for information about dementia then try checking out this links:

    Free PDF Downloads


  • The National Dementia Strategy
    published by the Department of Health February 2009.

  • Books - Dementia web's reading list


  • Now Where Did I Put My Glasses?
    Caring for Your Parents – A Practical and Emotional Lifeline. Written by Jackie Highe published by Simon & Shuster UK Ltd.
  • Caring for a Parent in Later Life
    Getting Support, and Coping with the Financial, Legal and Emotional Issues. Written by Judith Cameron published by Life Guides.
  • Contented Dementia
    24-hour Wraparound Care for Lifelong Well-being. Written by Oliver James published by Vermilion.
  • Living in the Labyrinth
    A personal journey through the maze of Alzheimer's. Written by Diana McGowin published by Elder Books.
  • Caring for your Elderly Parent
    Overcoming common problems. Written by Julia Bunton-Jones published by Sheldon Press.
  • Elder Rage
    How to Survive Caring for Aging Parents. Written by Jacqueline Marcell published by Impressive Press.
  • Losing Clive to Younger Onset Dementia
    One Family’s Story.
  • What Shall We Do With Mother?
    How to Manage When Your Elderly Parent Is Dependent on You. Written by Rosie Stal and Richard Craze published by White Ladder Press.
  • Learning to Speak Alzheimer’s
    The New Approach to Living Positively With Alzheimer’s Disease. Written by Joanne Koenig-Coste published by Vermilion.
  • Understanding Dementia
    Introduction to the subject of dementia intended for use by all health professionals involved in the provision of care. Written by Alan Jacques published by Churchill Livingstone.
  • The Simplicity of Dementia
    A Guide for Family and Carers. Written by Huub Buijssen published by Jessica Kingsley Publishers.
  • Challenging Behaviour in Dementia
    A Person-Centred Approach. Written by Graham Stokes published by Speachmark Publishing Ltd.
  • And Still The Music Plays
    Stories of People With Dementia. Written by Graham Stokes published by Speachmark Publishing Ltd.
  • Alzheimer’s and Other Dementias
    Explanations about the different types and causes of dementia. Written by Harry Cayton, Dr. Nori Graham, Dr. James Warner published by Class Publishing.
  • Remind Me Who I Am, Again
    A look at the question of identity, memory and autonomy that dementia raises. Written by Linda Grant published by Granta Books.
  • Dancing with Dementia
    My Story of Living Positively With Dementia. Written by Christine Bryden published by Jessica Kingsley Publishers.
  • Caring for Someone with Dementia
    This book shows how to cope and seek further help as well as containing detailed information on the dementia illness itself and what to expect in the future. Written by Jane Brotchie published by Age Concern Books.
  • What If It's Not Alzheimer's
    A Caregiver's Guide to Dementia. Written by Lisa and Gary Radin published by Prometheus Books (this book is specifically about frontotemporal dementia).
  • You Are Words
    Beautiful, insightful and touching poems. Written by John Killick published by Hawker (compiled from the words of people with dementia) Openings: Dementia Poems and Photographs by J Killick and C Cordonnier published by Hawker.
  • The Importance of Food and Mealtimes in Dementia Care
    The Table is Set. Written by Grethe Berg with foreward by Aase-Marit Nygard published by Jessica Kingsley Publishers.
  • Dementia: Walking not Wandering
    Fresh Approaches to Understanding and Practice. Edited by Mary Marshall published by Hawker.
  • Keeping Busy
    Handbook of Activities for Persons with Dementia. Written by James R Dowling published by The Johns Hopkins University Press.
  • Reminiscence Theatre
    Making Theatre from Memories. Written by Pam Schweitzer published by Jessica Kingsley Publishers.

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